SKIRMISHER

Under all circumstances, Tom Trueman must not stumble. Lest he ends up staring at his own squished jello of a brain.

When Tom was born, the bones in his hands and feet were fused leaving him with no toes or fingers - which is a common problem for Apert’s sufferers.

Soft ‘growth points’ in his skull were also firmly joined, stopping his head from growing.

He had the first of his operations at a cranio-facial unit in Oxford at the age of four months to relieve the pressure on his brain.

But another operation, last December, almost killed him. An infection around the pins holding a titanium plate in his head led to the loss of more than a third of his skull.

[Continue reading]

Stumble it!